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Nephrogenic Fibrosing Dermopathy

 
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Nephrogenic Fibrosing Dermopathy - June 4, 2007 5:11:00 PM   
Chocco

 

Posts: 190
Joined: September 6, 2006
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I am currently seeing a pt with nephrogenic Fibrosing Dermopathy. They traced the origin back to an MRI contrast ( or they think). I am currently working on transfer training and maintaining the mobility that he has + training his wife. If anyone has some experience with treating this any suggestions will be appreciated. The gentleman and his wife are great people, but their doctors have done little to answer their questions and i am doing the best I can.
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Re: Nephrogenic Fibrosing Dermopathy - June 5, 2007 10:30:00 AM   
Dr.Wagner


Posts: 1242
Joined: January 25, 2003
From: Indianapolis
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ouch that is very unfortunate. My goodness, I hope that he recovers.

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Dr. Wagner DO
Moderator of Medical Complexity Forum

(in reply to Chocco)
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RE: Nephrogenic Fibrosing Dermopathy - July 23, 2007 2:28:41 AM   
gshumrak

 

Posts: 9
Joined: March 4, 2005
From: Baltimore, Maryland
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The patient (23 y/o female)  I saw with this disease suffered from extremely painful joints, esp knees and hips.  I treated her in the acute rehabilitation stage.   We concentrated on trying to maintain the ROM both active and passive of her LEs and UEs.  We also focused on general mobility and standing tolerance.  By the time she left rehab she was transfering with min A of her mother and using a platform walker (she had wrist and finger contractures) to walk aprox. 10 feet, painfully.  She was also becoming more independent with bed mobility.  She underwent photophoresis treatments, which helped a little, but certainly no cure.  Good luck with your patient, this is a tough disease. 

(in reply to Chocco)
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