Joined: September 6, 2006
I am currently seeing a pt with nephrogenic Fibrosing Dermopathy. They traced the origin back to an MRI contrast ( or they think). I am currently working on transfer training and maintaining the mobility that he has + training his wife. If anyone has some experience with treating this any suggestions will be appreciated. The gentleman and his wife are great people, but their doctors have done little to answer their questions and i am doing the best I can.
The patient (23 y/o female) I saw with this disease suffered from extremely painful joints, esp knees and hips. I treated her in the acute rehabilitation stage. We concentrated on trying to maintain the ROM both active and passive of her LEs and UEs. We also focused on general mobility and standing tolerance. By the time she left rehab she was transfering with min A of her mother and using a platform walker (she had wrist and finger contractures) to walk aprox. 10 feet, painfully. She was also becoming more independent with bed mobility. She underwent photophoresis treatments, which helped a little, but certainly no cure. Good luck with your patient, this is a tough disease.