Torticollis++

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Torticollis++ - May 14, 2002 5:48:00 PM

Allie

Posts: 3
Joined: May 13, 2002
From: Louisville, KY, USA
Status: offline

Hi! I know that you have a thread on this subject, but I see that no one has written since 2000, so I thought I should try this way. I'm a PT working with a little boy who is 6 months old and has Prune Belly Syndrome. He has about 75% cervical PROM, but rests in right lateral flexion/left rotation. His family is obviously very concerned about his condition, specifically his lack of abdominal muscles. I just issued him an abdominal brace which is working well. This is my problem:
He was receiving PT at a hospital for approximately 2-3 months and has just recently started therapy with an OT and PT (me) in his home. My approach to his torticollis is to stretch as he tolerates, get him upright, educate the family (especially postitioning) and activities to encourage lateral flexion, reaching, and tracking. The OT has been talking with other PTs who are from a hospital where they brace children with torticollis. She calls me very often (which I don't mind because I love exchanging information) and is wanting another PT consult because she thinks I should have him in a collar. The PT who did his primary assessment has a ton of experience and feels we should continue the way I've explained above. We feel that bracing/immobilization will cause weakness and possibly encourage him to fight it and increase his lateral flexion to his right side. His MD also referred him to a specialist re: a helmet because of his head shape and facial asymmetries. I fear that putting him in a brace with further upset him and he is already having respiratory problems. I plan on attending the MD appointment to discuss the helmet and other options, but I want as much information as I can get my hands on before then. What is the normal age for torticollis to resolve? The OT continues to question my decision to wait on the collar-- does anyone know of research that may help me out here. I have been searching, but any help would be greatly appreciated! Thank you so much!